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  2. Gesundheit
  3. Publikationen
  4. Publikationen Gesundheit
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dc.contributor.authorde Wolf-Linder, Susanne-
dc.contributor.authorKramer, Iris-
dc.contributor.authorEllis-Smith, Clare-
dc.contributor.authorHodiamont, Farina-
dc.contributor.authorReisinger, Margarete-
dc.contributor.authorGohles, Elisabeth-
dc.contributor.authorMurtagh, Fliss E.M.-
dc.contributor.authorSchubert, Maria-
dc.date.accessioned2022-06-01T15:43:40Z-
dc.date.available2022-06-01T15:43:40Z-
dc.date.issued2022-05-18-
dc.identifier.issn0269-2163de_CH
dc.identifier.issn1477-030Xde_CH
dc.identifier.urihttps://digitalcollection.zhaw.ch/handle/11475/25054-
dc.description.abstractBackground/aims: People with advanced dementia (PwD) are affected by symptoms and needs that are challenging for nurses and relatives to elicit. The UK-developed IPOS-Dem, translated/culturally adapted into Swiss-German for the acute care and community care setting, is a holistic, person-centred measure to aid caregivers to identify symptoms and needs. Comprehension of the IPOS-Dem needs to be tested before more detailed psychometric testing. Methods: Nurses with diploma/university degrees and relatives over 18 years were purposively recruited. Rounds of a maximum three cognitive interviews were conducted. Thinking-aloud- and probing questions, based on Tourangeau’s (comprehension, retrieval, judgement, and response) model, were applied with each participant. Interviews were transcribed and analysed from audio file by two independent researchers. Inconsistencies were resolved by consensus. Results: Eight interviews in three rounds were completed in Spring 2021. Two relatives, three acute-care (ACNs), and three district nurses (DNs) agreed to participate. Participants welcomed the clear and understandable instructions, and description of all items. ACNs and DNs differed in judgement of items, from being able to assess the PwDs need at all (e.g., feeling sad, enjoying things), to interpreting a symptom or need, and having different concepts in mind (e.g., agitation, wandering). Retrieval difficulties and differences between ACNs and DNs were identified in psycho-social items (e.g., ‘feeling at peace’); ACNs were reflecting on the PwDs overall life, whilst DNs were thinking about the present and how the PwD is affected by it. Conclusions: The IPOS-Dem has been adapted in culture and content validity, with Swiss-German versions developed for both the acute care and community care setting. Although the versions do not differ substantially, the implications for teaching- and implementation of the IPOSDem into routine care diverge considerably.de_CH
dc.language.isoende_CH
dc.publisherSagede_CH
dc.relation.ispartofPalliative Medicinede_CH
dc.rightsLicence according to publishing contractde_CH
dc.subject.ddc610.73: Pflegede_CH
dc.subject.ddc616.8: Neurologie und Krankheiten des Nervensystemsde_CH
dc.titleSeparated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care settingde_CH
dc.typeKonferenz: Posterde_CH
dcterms.typeTextde_CH
zhaw.departementGesundheitde_CH
zhaw.organisationalunitInstitut für Pflege (IPF)de_CH
dc.identifier.doi10.1177/02692163221093145de_CH
zhaw.conference.details12th World Research Congress of the European Association for Palliative Care (EAPC), online, 18-20 May 2022de_CH
zhaw.funding.euNode_CH
zhaw.issue1_supplde_CH
zhaw.originated.zhawYesde_CH
zhaw.pages.end55de_CH
zhaw.pages.start54de_CH
zhaw.publication.statuspublishedVersionde_CH
zhaw.volume36de_CH
zhaw.publication.reviewKeine Begutachtungde_CH
zhaw.webfeedAngewandte Gerontologiede_CH
zhaw.funding.zhawPersonenzentrierte Pflege für Menschen mit einer Demenz: Verbesserung der Lebensqualität mittels einer ergebnisgeleiteten systematischen Erfassung relevanter belastender Symptome, Bedürfnisse und Betreuungsfragende_CH
zhaw.author.additionalNode_CH
zhaw.display.portraitYesde_CH
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de Wolf-Linder, S., Kramer, I., Ellis-Smith, C., Hodiamont, F., Reisinger, M., Gohles, E., Murtagh, F. E. M., & Schubert, M. (2022). Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting [Conference poster]. Palliative Medicine, 36(1_suppl), 54–55. https://doi.org/10.1177/02692163221093145
de Wolf-Linder, S. et al. (2022) ‘Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting’, in Palliative Medicine. Sage, pp. 54–55. Available at: https://doi.org/10.1177/02692163221093145.
S. de Wolf-Linder et al., “Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting,” in Palliative Medicine, May 2022, vol. 36, no. 1_suppl, pp. 54–55. doi: 10.1177/02692163221093145.
DE WOLF-LINDER, Susanne, Iris KRAMER, Clare ELLIS-SMITH, Farina HODIAMONT, Margarete REISINGER, Elisabeth GOHLES, Fliss E.M. MURTAGH und Maria SCHUBERT, 2022. Separated by a common language : cognitive interview study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the acute care- and district nurse-/community home care setting. In: Palliative Medicine. Conference poster. Sage. 18 Mai 2022. S. 54–55
de Wolf-Linder, Susanne, Iris Kramer, Clare Ellis-Smith, Farina Hodiamont, Margarete Reisinger, Elisabeth Gohles, Fliss E.M. Murtagh, and Maria Schubert. 2022. “Separated by a Common Language : Cognitive Interview Study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the Acute Care- and District Nurse-/Community Home Care Setting.” Conference poster. In Palliative Medicine, 36:54–55. Sage. https://doi.org/10.1177/02692163221093145.
de Wolf-Linder, Susanne, et al. “Separated by a Common Language : Cognitive Interview Study on the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem) in the Acute Care- and District Nurse-/Community Home Care Setting.” Palliative Medicine, vol. 36, no. 1_suppl, Sage, 2022, pp. 54–55, https://doi.org/10.1177/02692163221093145.


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