Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue

Hersche, Ruth; Weise, Andrea; Michel, Gisela; Kesselring, Jürg; Barbero, Marco; Kool, Jan

doi:10.7224/1537-2073.2018-058

Publication type:	Article in scientific journal
Type of review:	Peer review (publication)
Title:	Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue
Authors:	Hersche, Ruth Weise, Andrea Michel, Gisela Kesselring, Jürg Barbero, Marco Kool, Jan
et. al:	No
DOI:	10.7224/1537-2073.2018-058
Published in:	International Journal of MS Care
Volume(Issue):	21
Issue:	6
Page(s):	265
Pages to:	274
Issue Date:	2019
Publisher / Ed. Institution:	Consortium of Multiple Sclerosis Centers
ISSN:	1537-2073
Language:	English
Subject (DDC):	615.8515: Occupational therapy 616.8: Neurology, diseases of nervous system
Abstract:	Background: Energy conservation strategies and cognitive behavioral therapy techniques are valid parts of outpatient fatigue management education in persons with multiple sclerosis (pwMS). In many European countries, multidisciplinary rehabilitation for pwMS is chiefly delivered in specialized rehabilitation centers where pwMS benefit from short intensive inpatient rehabilitation, annually. However, no evidence-based and standardized fatigue management education program compatible with the inpatient setting is available. Methods: Based on a literature search and the expertise of occupational therapists (OTs), a manualized group-based Inpatient Energy Management Education (IEME) program for use during 3-week inpatient rehabilitation, which incorporates energy conservation and cognitive behavioral management approaches, was developed. An IEME - pilot operated by trained OTs has included 13 persons with multiple sclerosis-related fatigue. IEME user and OTs experiences were collected during focus groups to refine the program's materials and to verify its feasibility in the inpatient setting. Results: The program was feasible in an inpatient setting and met the needs of the pwMS. Targeted behaviors were trained in all participants within a clinical context. In-charge OTs were able to effect behavioral change through IEME. Conclusions: Users evaluate the evidence-based IEME program positively. The topics, supporting materials, and self-training tasks are useful for the promotion and facilitation of behavioral change. The next step will be a clinical trial to investigate the efficacy of IEME and to evaluate relevant changes in self-efficacy, fatigue impact, and quality of life after patients return home.
URI:	https://digitalcollection.zhaw.ch/handle/11475/17905
Fulltext version:	Published version
License (according to publishing contract):	Licence according to publishing contract
Departement:	School of Health Sciences
Organisational Unit:	Institute of Occupational Therapy (IER)
Appears in collections:	Publikationen Gesundheit

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Hersche, R., Weise, A., Michel, G., Kesselring, J., Barbero, M., & Kool, J. (2019). Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue. International Journal of MS Care, 21(6), 265–274. https://doi.org/10.7224/1537-2073.2018-058

Hersche, R. et al. (2019) ‘Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue’, International Journal of MS Care, 21(6), pp. 265–274. Available at: https://doi.org/10.7224/1537-2073.2018-058.

R. Hersche, A. Weise, G. Michel, J. Kesselring, M. Barbero, and J. Kool, “Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue,” International Journal of MS Care, vol. 21, no. 6, pp. 265–274, 2019, doi: 10.7224/1537-2073.2018-058.

HERSCHE, Ruth, Andrea WEISE, Gisela MICHEL, Jürg KESSELRING, Marco BARBERO und Jan KOOL, 2019. Development and preliminary evaluation of a 3-week Inpatient Energy Management Education (IEME) program for people with multiple sclerosis-related fatigue. International Journal of MS Care. 2019. Bd. 21, Nr. 6, S. 265–274. DOI 10.7224/1537-2073.2018-058

Hersche, Ruth, Andrea Weise, Gisela Michel, Jürg Kesselring, Marco Barbero, and Jan Kool. 2019. “Development and Preliminary Evaluation of a 3-Week Inpatient Energy Management Education (IEME) Program for People with Multiple Sclerosis-Related Fatigue.” International Journal of MS Care 21 (6): 265–74. https://doi.org/10.7224/1537-2073.2018-058.

Hersche, Ruth, et al. “Development and Preliminary Evaluation of a 3-Week Inpatient Energy Management Education (IEME) Program for People with Multiple Sclerosis-Related Fatigue.” International Journal of MS Care, vol. 21, no. 6, 2019, pp. 265–74, https://doi.org/10.7224/1537-2073.2018-058.