Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study

Hodiamont, Farina; Hock, Helena; Ellis-Smith, Clare; Evans, Catherine; de Wolf-Linder, Susanne; Jünger, Saskia; Diehl-Schmid, Janine; Burner-Fritsch, Isabel; Bausewein, Claudia

doi:10.1177/02692163211004403

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-22372

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DC Field	Value	Language
dc.contributor.author	Hodiamont, Farina	-
dc.contributor.author	Hock, Helena	-
dc.contributor.author	Ellis-Smith, Clare	-
dc.contributor.author	Evans, Catherine	-
dc.contributor.author	de Wolf-Linder, Susanne	-
dc.contributor.author	Jünger, Saskia	-
dc.contributor.author	Diehl-Schmid, Janine	-
dc.contributor.author	Burner-Fritsch, Isabel	-
dc.contributor.author	Bausewein, Claudia	-
dc.date.accessioned	2021-04-29T09:40:13Z	-
dc.date.available	2021-04-29T09:40:13Z	-
dc.date.issued	2021-04-16	-
dc.identifier.issn	0269-2163	de_CH
dc.identifier.issn	1477-030X	de_CH
dc.identifier.uri	https://digitalcollection.zhaw.ch/handle/11475/22372	-
dc.description.abstract	Background: Dementia is a life-limiting disease with high symptom burden. The Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) is the first comprehensive person-centered measure to identify and measure palliative care needs of people with dementia. However, such a measure is missing in the German health care system. Aim: To develop a culturally adapted German version of the IPOS-Dem and determine its content validity as a foundation for comprehensive psychometric testing. Design: Cognitive interview study with intermittent analysis and questionnaire adaptation. Interview guide and coding frame followed thematic analysis according to Willis complemented by Tourangeau’s model of cognitive aspects of survey methodology: comprehension, retrieval, judgment, response. Participants: Purposive sample with professionals (n = 29) and family carers (n = 6) of people with advanced dementia in seven nursing homes and person’s own home care in four interview rounds (n = 11; 10; 7; 7). Results: IPOS-Dem was regarded as comprehensive and accessible. Cultural adaption pertained to issues of comprehension and judgment. Comprehension challenges referred to the person-centered concept of “being affected by” used in the POS-measures. Judgment problems related to persons with limited communication causing challenges in assessment. Conclusion: Most issues of cultural adaptation could be addressed by questionnaire modifications. However, interviews unveiled fundamental challenges for using proxy reported person-centered assessments. Continuous training on how to use the instrument is imperative to integrate the person-centered approach of palliative care into nursing homes as a key provider of generalist palliative care for people with dementia. The refined version is ready for psychometric testing.	de_CH
dc.language.iso	en	de_CH
dc.publisher	Sage	de_CH
dc.relation.ispartof	Palliative Medicine	de_CH
dc.rights	http://creativecommons.org/licenses/by-nc/4.0/	de_CH
dc.subject	Palliative care	de_CH
dc.subject	Organizational culture	de_CH
dc.subject	Outcome measurement	de_CH
dc.subject	Qualitative research	de_CH
dc.subject	Survey methodology	de_CH
dc.subject.ddc	610.73: Pflege	de_CH
dc.subject.ddc	616.8: Neurologie und Krankheiten des Nervensystems	de_CH
dc.title	Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study	de_CH
dc.type	Beitrag in wissenschaftlicher Zeitschrift	de_CH
dcterms.type	Text	de_CH
zhaw.departement	Gesundheit	de_CH
zhaw.organisationalunit	Institut für Pflege (IPF)	de_CH
dc.identifier.doi	10.1177/02692163211004403	de_CH
dc.identifier.doi	10.21256/zhaw-22372	-
dc.identifier.pmid	33863246	de_CH
zhaw.funding.eu	No	de_CH
zhaw.issue	5	de_CH
zhaw.originated.zhaw	Yes	de_CH
zhaw.pages.end	971	de_CH
zhaw.pages.start	962	de_CH
zhaw.publication.status	publishedVersion	de_CH
zhaw.volume	35	de_CH
zhaw.publication.review	Peer review (Publikation)	de_CH
zhaw.webfeed	Angewandte Gerontologie	de_CH
zhaw.funding.zhaw	Implementation von Patienten-zentrierten Outcome Messinstrumenten (PROMs) im Palliative Zentrum am Kantonsspital Winterthur	de_CH
zhaw.author.additional	No	de_CH
zhaw.display.portrait	Yes	de_CH
Appears in collections:	Publikationen Gesundheit

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Hodiamont, F., Hock, H., Ellis-Smith, C., Evans, C., de Wolf-Linder, S., Jünger, S., Diehl-Schmid, J., Burner-Fritsch, I., & Bausewein, C. (2021). Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study. Palliative Medicine, 35(5), 962–971. https://doi.org/10.1177/02692163211004403

Hodiamont, F. et al. (2021) ‘Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study’, Palliative Medicine, 35(5), pp. 962–971. Available at: https://doi.org/10.1177/02692163211004403.

F. Hodiamont et al., “Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study,” Palliative Medicine, vol. 35, no. 5, pp. 962–971, Apr. 2021, doi: 10.1177/02692163211004403.

HODIAMONT, Farina, Helena HOCK, Clare ELLIS-SMITH, Catherine EVANS, Susanne DE WOLF-LINDER, Saskia JÜNGER, Janine DIEHL-SCHMID, Isabel BURNER-FRITSCH und Claudia BAUSEWEIN, 2021. Culture in the spotlight : cultural adaptation and content validity of the integrated palliative care outcome scale for dementia : a cognitive interview study. Palliative Medicine. 16 April 2021. Bd. 35, Nr. 5, S. 962–971. DOI 10.1177/02692163211004403

Hodiamont, Farina, Helena Hock, Clare Ellis-Smith, Catherine Evans, Susanne de Wolf-Linder, Saskia Jünger, Janine Diehl-Schmid, Isabel Burner-Fritsch, and Claudia Bausewein. 2021. “Culture in the Spotlight : Cultural Adaptation and Content Validity of the Integrated Palliative Care Outcome Scale for Dementia : A Cognitive Interview Study.” Palliative Medicine 35 (5): 962–71. https://doi.org/10.1177/02692163211004403.

Hodiamont, Farina, et al. “Culture in the Spotlight : Cultural Adaptation and Content Validity of the Integrated Palliative Care Outcome Scale for Dementia : A Cognitive Interview Study.” Palliative Medicine, vol. 35, no. 5, Apr. 2021, pp. 962–71, https://doi.org/10.1177/02692163211004403.