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Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-25889
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dc.contributor.authorMitteregger, Elena-
dc.contributor.authorWehrli, Martina-
dc.contributor.authorTheiler, Manuela-
dc.contributor.authorLogoteta, Jana-
dc.contributor.authorNast, Irina-
dc.contributor.authorSeliner, Brigitte-
dc.contributor.authorLatal, Beatrice-
dc.date.accessioned2022-10-28T13:07:02Z-
dc.date.available2022-10-28T13:07:02Z-
dc.date.issued2021-
dc.identifier.issn1471-2431de_CH
dc.identifier.urihttps://digitalcollection.zhaw.ch/handle/11475/25889-
dc.description.abstractBackground: Children with severe congenital heart disease (CHD) are a group of children at risk for neurodevelopmental impairments. Motor development is the first domain to show a delay during the first year of life and may significantly contribute to parental concerns, stress, and difficulties in early child-parent attachment. Thus, the aim of the study was to better understand the wishes and concerns of parents of children with CHD and explore their experience of their children’s neuromotor development in the first year of life. Methods: In this qualitative study, fourteen families were recruited. Their children were aged 1–3 years and had undergone open heart surgery within the first 6 months of life. Semi-structured interviews were audio-recorded and transcribed. The data was explored within an expert group, and a qualitative content analysis was conducted using VERBI MAXQDA software 2020. The study was conducted in accordance with the COREQ checklist. Results: Parents of children with CHD reported several burdens and needs. Parental burdens concerned the child’s motor development, their own physical and psychological strain, and difficulties in communication with healthcare professionals. The needs, parents reported included supporting their child’s motor development, a medical coordinator, and better communication between healthcare professionals and parents. During the first phase of their children’s illness, parents underwent a dynamic transitional phase and expressed the need to rely on themselves, to trust their children’s abilities, and to regain self-determination in order to strengthen their self-confidence. Conclusions: It is essential to involve parents of children with CHD at an early stage of decision-making. Parents are experts in their children and appreciate medical information provided by healthcare professionals. Interprofessional teamwork, partnering with parents, and continuous support are crucial to providing the best possible care for children and their families. Family-centred early motor intervention for CHD children might counteract the effect of parental overprotection and improve children’s motor development and thus strengthen child-parent interaction. In future work, we aim to evaluate a family-centred early motor intervention for children with CHD developed on the basis of this qualitative study. Trial registration: Not applicable.de_CH
dc.language.isoende_CH
dc.publisherBioMed Centralde_CH
dc.relation.ispartofBMC Pediatricsde_CH
dc.rightshttp://creativecommons.org/licenses/by/4.0/de_CH
dc.subjectCongenital heart diseasede_CH
dc.subjectOpen heart surgeryde_CH
dc.subjectInfantde_CH
dc.subjectChildde_CH
dc.subjectParental experiencede_CH
dc.subjectMotor development delayde_CH
dc.subjectBurdende_CH
dc.subjectConcernde_CH
dc.subjectQualitative studyde_CH
dc.subject.ddc618.92: Pädiatriede_CH
dc.titleParental experience of the neuromotor development of children with congenital heart disease : an exploratory qualitative studyde_CH
dc.typeBeitrag in wissenschaftlicher Zeitschriftde_CH
dcterms.typeTextde_CH
zhaw.departementGesundheitde_CH
zhaw.organisationalunitInstitut für Physiotherapie (IPT)de_CH
dc.identifier.doi10.1186/s12887-021-02808-8de_CH
dc.identifier.doi10.21256/zhaw-25889-
dc.identifier.pmid34598680de_CH
zhaw.funding.euNode_CH
zhaw.issue430de_CH
zhaw.originated.zhawYesde_CH
zhaw.publication.statuspublishedVersionde_CH
zhaw.volume21de_CH
zhaw.publication.reviewPeer review (Publikation)de_CH
zhaw.author.additionalNode_CH
zhaw.display.portraitYesde_CH
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Mitteregger, E., Wehrli, M., Theiler, M., Logoteta, J., Nast, I., Seliner, B., & Latal, B. (2021). Parental experience of the neuromotor development of children with congenital heart disease : an exploratory qualitative study. BMC Pediatrics, 21(430). https://doi.org/10.1186/s12887-021-02808-8
Mitteregger, E. et al. (2021) ‘Parental experience of the neuromotor development of children with congenital heart disease : an exploratory qualitative study’, BMC Pediatrics, 21(430). Available at: https://doi.org/10.1186/s12887-021-02808-8.
E. Mitteregger et al., “Parental experience of the neuromotor development of children with congenital heart disease : an exploratory qualitative study,” BMC Pediatrics, vol. 21, no. 430, 2021, doi: 10.1186/s12887-021-02808-8.
MITTEREGGER, Elena, Martina WEHRLI, Manuela THEILER, Jana LOGOTETA, Irina NAST, Brigitte SELINER und Beatrice LATAL, 2021. Parental experience of the neuromotor development of children with congenital heart disease : an exploratory qualitative study. BMC Pediatrics. 2021. Bd. 21, Nr. 430. DOI 10.1186/s12887-021-02808-8
Mitteregger, Elena, Martina Wehrli, Manuela Theiler, Jana Logoteta, Irina Nast, Brigitte Seliner, and Beatrice Latal. 2021. “Parental Experience of the Neuromotor Development of Children with Congenital Heart Disease : An Exploratory Qualitative Study.” BMC Pediatrics 21 (430). https://doi.org/10.1186/s12887-021-02808-8.
Mitteregger, Elena, et al. “Parental Experience of the Neuromotor Development of Children with Congenital Heart Disease : An Exploratory Qualitative Study.” BMC Pediatrics, vol. 21, no. 430, 2021, https://doi.org/10.1186/s12887-021-02808-8.


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