Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study

Schuler, Christina; Waldboth, Veronika; Ntow, George Edward; Agbozo, Faith

doi:10.1111/jan.15566

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-27044

Publication type:	Article in scientific journal
Type of review:	Open peer review
Title:	Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study
Authors:	Schuler, Christina Waldboth, Veronika Ntow, George Edward Agbozo, Faith
et. al:	No
DOI:	10.1111/jan.15566 10.21256/zhaw-27044
Published in:	Journal of Advanced Nursing
Volume(Issue):	79
Issue:	5
Page(s):	1840
Pages to:	1855
Issue Date:	10-Feb-2023
Publisher / Ed. Institution:	Wiley
ISSN:	0309-2402 1365-2648
Language:	English
Subjects:	Continuum of care; Family system care or family-centred care; Ghana; Grounded theory; Low birth weight; Neonatal nursing; Newborn health; Nurse
Subject (DDC):	618.92: Pediatrics
Abstract:	Aims: To explore the experiences of health professionals and families concerning supporting low-birth weight (LBW) infants along the continuum of care (CoC) in Ghana with the goal to unveil new strategies to improve the quality of neonatal care. Design: A constructivist grounded theory. Method: Simultaneous data collection and analysis among health professionals alongside families with LBW infants from September 2020 to April 2021. The study used constructivist grounded theory strategies for data collection and analysis. Results: The analysis of 25 interviews resulted in a theoretical model describing 10 themes along the CoC for LBW infants, categorized into health and family systems drivers. In this paper, we focus on the latter. Early bonding and family involvement were empowering. Mothers needed assistance in balancing hope and confidence which enabled them to render special care to their LBW infants. Providing mothers with financial and domestic support as well as creating awareness on newborn health in communities were important. Conclusion: To achieve family involvement, a coordinated CoC must entail key players and be culturally inclusive. It must be applied at all levels in the CoC process in a non-linear faction. This can help LBW infants to thrive and to reach their full developmental potential. Impact: The theoretical model developed shows the importance of family involvement through family systems care for a comprehensive response in addressing needs of health professionals and families with LBW infants and bridging the fragmentations in the neonatal CoC in Ghana. Context-tailored research on family systems care in the neonatal period is necessary to achieve a quality CoC for LBW infants and their families. Patient or Public Contribution: Caregivers and providers participated by granting in-depth interviews. Care providers further contributed through their feedback on preliminary findings.
URI:	https://digitalcollection.zhaw.ch/handle/11475/27044
Fulltext version:	Published version
License (according to publishing contract):	CC BY 4.0: Attribution 4.0 International
Departement:	School of Health Sciences
Organisational Unit:	Institute of Nursing (IPF)
Appears in collections:	Publikationen Gesundheit

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Schuler, C., Waldboth, V., Ntow, G. E., & Agbozo, F. (2023). Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study. Journal of Advanced Nursing, 79(5), 1840–1855. https://doi.org/10.1111/jan.15566

Schuler, C. et al. (2023) ‘Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study’, Journal of Advanced Nursing, 79(5), pp. 1840–1855. Available at: https://doi.org/10.1111/jan.15566.

C. Schuler, V. Waldboth, G. E. Ntow, and F. Agbozo, “Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study,” Journal of Advanced Nursing, vol. 79, no. 5, pp. 1840–1855, Feb. 2023, doi: 10.1111/jan.15566.

SCHULER, Christina, Veronika WALDBOTH, George Edward NTOW und Faith AGBOZO, 2023. Experiences of families and health professionals along the care continuum for low-birth weight neonates : a constructivist grounded theory study. Journal of Advanced Nursing. 10 Februar 2023. Bd. 79, Nr. 5, S. 1840–1855. DOI 10.1111/jan.15566

Schuler, Christina, Veronika Waldboth, George Edward Ntow, and Faith Agbozo. 2023. “Experiences of Families and Health Professionals along the Care Continuum for Low-Birth Weight Neonates : A Constructivist Grounded Theory Study.” Journal of Advanced Nursing 79 (5): 1840–55. https://doi.org/10.1111/jan.15566.

Schuler, Christina, et al. “Experiences of Families and Health Professionals along the Care Continuum for Low-Birth Weight Neonates : A Constructivist Grounded Theory Study.” Journal of Advanced Nursing, vol. 79, no. 5, Feb. 2023, pp. 1840–55, https://doi.org/10.1111/jan.15566.