Parents' perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland

Krieger, Beate; Piškur, Barbara; Beurskens, Anna J. H. M.; Moser, Albine

doi:10.1111/cch.13155

Please use this identifier to cite or link to this item: https://doi.org/10.21256/zhaw-28359

Full metadata record

DC Field	Value	Language
dc.contributor.author	Krieger, Beate	-
dc.contributor.author	Piškur, Barbara	-
dc.contributor.author	Beurskens, Anna J. H. M.	-
dc.contributor.author	Moser, Albine	-
dc.date.accessioned	2023-07-27T09:40:37Z	-
dc.date.available	2023-07-27T09:40:37Z	-
dc.date.issued	2023-07-24	-
dc.identifier.issn	0305-1862	de_CH
dc.identifier.issn	1365-2214	de_CH
dc.identifier.uri	https://digitalcollection.zhaw.ch/handle/11475/28359	-
dc.description.abstract	Background: Low participation in youth with autism spectrum disorder (ASD) has been reported, but age-related and contextual information is rare. Objective: This study aimed to describe, from parental perspectives, two patterns of participation and parental desires for change of children (age: 5–11) and adolescents (age: 12–17) with ASD in Switzerland. Method: A cross-sectional design used the German version of the Participation and Environment Measure-Child and Youth to describe and juxtapose the participation results of 60 children and 55 adolescents with ASD in 45 activities at home, school and in the community and parental desires for change. Results: Participation patterns differed between settings and age groups. Both groups were found to participate most at home, followed by school, whereas community participation was either low or nonexistent. Children were more involved at home than adolescents, while school involvement was higher than participation frequency in both age groups. Community participation frequency was generally low but higher in children than in adolescents, while involvement was similarly low in both groups. Half the parents expressed desire for change with three tendencies: (1) widespread desire for change at home due to high support needs, (2) parents of adolescents expressed more desire for change in all settings than those of children and (3) all parents mainly desired to increase participation frequency and involvement. Conclusions: This study informs research and social, health and community service providers to further reshape their programmes to meet parental needs and increase the participation of youth with ASD.	de_CH
dc.language.iso	en	de_CH
dc.publisher	Wiley	de_CH
dc.relation.ispartof	Child: Care, Health and Development	de_CH
dc.rights	https://creativecommons.org/licenses/by-nc-nd/4.0/	de_CH
dc.subject	PEM-CY	de_CH
dc.subject	Autism	de_CH
dc.subject	Involvement	de_CH
dc.subject	Parent	de_CH
dc.subject	Participation	de_CH
dc.subject	Youth	de_CH
dc.subject.ddc	302: Soziale Interaktion	de_CH
dc.subject.ddc	616.8: Neurologie und Krankheiten des Nervensystems	de_CH
dc.title	Parents' perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland	de_CH
dc.type	Beitrag in wissenschaftlicher Zeitschrift	de_CH
dcterms.type	Text	de_CH
zhaw.departement	Gesundheit	de_CH
zhaw.organisationalunit	Institut für Ergotherapie (IER)	de_CH
dc.identifier.doi	10.1111/cch.13155	de_CH
dc.identifier.doi	10.21256/zhaw-28359	-
dc.identifier.pmid	37487595	de_CH
zhaw.funding.eu	No	de_CH
zhaw.issue	1	de_CH
zhaw.originated.zhaw	Yes	de_CH
zhaw.pages.start	e13155	de_CH
zhaw.publication.status	publishedVersion	de_CH
zhaw.volume	50	de_CH
zhaw.publication.review	Peer review (Publikation)	de_CH
zhaw.webfeed	G: Gesundheit von Kindern und Jugendlichen	de_CH
zhaw.author.additional	No	de_CH
zhaw.display.portrait	Yes	de_CH
Appears in collections:	Publikationen Gesundheit

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Krieger, B., Piškur, B., Beurskens, A. J. H. M., & Moser, A. (2023). Parents’ perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland. Child: Care, Health and Development, 50(1), e13155. https://doi.org/10.1111/cch.13155

Krieger, B. et al. (2023) ‘Parents” perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland’, Child: Care, Health and Development, 50(1), p. e13155. Available at: https://doi.org/10.1111/cch.13155.

B. Krieger, B. Piškur, A. J. H. M. Beurskens, and A. Moser, “Parents’ perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland,” Child: Care, Health and Development, vol. 50, no. 1, p. e13155, Jul. 2023, doi: 10.1111/cch.13155.

KRIEGER, Beate, Barbara PIŠKUR, Anna J. H. M. BEURSKENS und Albine MOSER, 2023. Parents‘ perceptions: participation patterns and desires for change for children and adolescents with autism spectrum disorder : a descriptive population-based study from Switzerland. Child: Care, Health and Development. 24 Juli 2023. Bd. 50, Nr. 1, S. e13155. DOI 10.1111/cch.13155

Krieger, Beate, Barbara Piškur, Anna J. H. M. Beurskens, and Albine Moser. 2023. “Parents’ Perceptions: Participation Patterns and Desires for Change for Children and Adolescents with Autism Spectrum Disorder : A Descriptive Population-Based Study from Switzerland.” Child: Care, Health and Development 50 (1): e13155. https://doi.org/10.1111/cch.13155.

Krieger, Beate, et al. “Parents’ Perceptions: Participation Patterns and Desires for Change for Children and Adolescents with Autism Spectrum Disorder : A Descriptive Population-Based Study from Switzerland.” Child: Care, Health and Development, vol. 50, no. 1, July 2023, p. e13155, https://doi.org/10.1111/cch.13155.