‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions

Linimayr, Johanna; Graser, Judith; Gredig, Selina; van Hedel, Hubertus; Grunt, Sebastian; Tscherter, Anne; Schulze, Christina

Publication type:	Conference other
Type of review:	Peer review (abstract)
Title:	‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions
Authors:	Linimayr, Johanna Graser, Judith Gredig, Selina van Hedel, Hubertus Grunt, Sebastian Tscherter, Anne Schulze, Christina
et. al:	No
Conference details:	3rd SACD Research Day, Bern, Switzerland, 25 January 2024
Issue Date:	25-Jan-2024
Language:	English
Subjects:	Sibling; Participation; Scoping review; Chronic condition; Childhood; Disability
Subject (DDC):	305: Groups (age, origine, gender, income) 306.8: Family sociology 616.8: Neurology, diseases of nervous system
Abstract:	Introduction: Participation restrictions of children and youth with chronic conditions also influence their typically developing siblings. Some studies investigate sibling factors (e.g., siblings’ adjustment or support needs) but comprehensive knowledge on their participation in daily life is scarce. This scoping review aims to provide an overview of currently available evidence on siblings’ participation. Methods: The scoping review was conducted following the JBI methodology for scoping reviews. Search databases involve health (MEDLINE, CINAHL, AMED), psychology (PsycInfo), education, and social sciences (ERIC) oriented databases. The final scoping review includes published peer-reviewed studies in English and German focusing on siblings of children with chronic conditions (population) and their participation (concept) in daily life situations in childhood or youth (such as home, community, and school) (context). We excluded other information sources and studies not related to the described population, concept, and context. The study selection process was conducted in collaboration between reviewers using © 2023 Covidence systematic review software. Results: Searches were conducted between August and September 2023 and resulted in 6829 studies. Insights from the full text screening and data extraction will be presented including general topics and research approaches in use in relation to siblings’ participation. Discussion: The implications and relevance of this scoping review will be discussed in the context of its methodology and the concept of participation. Knowledge on siblings’ participation should inform research and practice on most relevant aspects, challenges, and potentials.
URI:	https://digitalcollection.zhaw.ch/handle/11475/30453
Fulltext version:	Published version
License (according to publishing contract):	Not specified
Departement:	School of Health Sciences
Organisational Unit:	Institute of Occupational Therapy (IER)
Published as part of the ZHAW project:	Parti-CP: Barrieren und Förderfaktoren für Partizipation von Kindern mit CP, deren Geschwister und Familien in der Schweiz
Appears in collections:	Publikationen Gesundheit

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Linimayr, J., Graser, J., Gredig, S., van Hedel, H., Grunt, S., Tscherter, A., & Schulze, C. (2024, January 25). ‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions. 3rd SACD Research Day, Bern, Switzerland, 25 January 2024.

Linimayr, J. et al. (2024) ‘‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions’, in 3rd SACD Research Day, Bern, Switzerland, 25 January 2024.

J. Linimayr et al., “‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions,” in 3rd SACD Research Day, Bern, Switzerland, 25 January 2024, Jan. 2024.

LINIMAYR, Johanna, Judith GRASER, Selina GREDIG, Hubertus VAN HEDEL, Sebastian GRUNT, Anne TSCHERTER und Christina SCHULZE, 2024. ‘Siblings’ participation : insights from a scoping review focusing on siblings of children with chronic conditions. In: 3rd SACD Research Day, Bern, Switzerland, 25 January 2024. Conference presentation. 25 Januar 2024

Linimayr, Johanna, Judith Graser, Selina Gredig, Hubertus van Hedel, Sebastian Grunt, Anne Tscherter, and Christina Schulze. 2024. “‘Siblings’ Participation : Insights from a Scoping Review Focusing on Siblings of Children with Chronic Conditions.” Conference presentation. In 3rd SACD Research Day, Bern, Switzerland, 25 January 2024.

Linimayr, Johanna, et al. “‘Siblings’ Participation : Insights from a Scoping Review Focusing on Siblings of Children with Chronic Conditions.” 3rd SACD Research Day, Bern, Switzerland, 25 January 2024, 2024.